Living with
WHIM syndrome
Living with a chronic immunodeficiency can impact your life
Even with a WHIM syndrome diagnosis, you may still be seeking answers about your recurrent infections and what more can be done to manage them. Talking openly to your healthcare provider about how WHIM syndrome and its symptoms affect you can help them develop a treatment plan that works for you.
Some topics to bring up with your healthcare provider can include:
Frequency, severity, and duration of infections
Other symptoms you may be experiencing, such as warts, and how they impact your life
Current treatments or medications and how you are responding to them
Personal stories from people living with WHIM syndrome
Hear how a genetic test answered a lifelong mystery for sisters Gaby and Willow.
See other stories here
Meet People With WHIM Syndrome
Sign up for virtual Patient Education Programs where you can hear from people living with WHIM syndrome and learn more from an X4 Nurse Educator.*
I’ve learned to become my own best advocate. WHIM syndrome is a rare condition, and it’s possible some doctors won’t be familiar with it. If you’re out there, newly diagnosed, or just suspecting something’s wrong, here’s what I want you to know: Don’t give up. -Lauren
An X4 Nurse Educator* who specializes in WHIM syndrome can help you and your family learn more about living with WHIM syndrome and ways to manage it.
*X4 Nurse Educators are employees of X4 Pharmaceuticals and do not work under the direction of a healthcare professional; they do not offer medical or treatment-related advice. For treatment and medical questions, you should contact your healthcare provider.